Becoming Hermits

I just got word from Cannon's dr at ACH that he will not qualify for the RSV shots. We cannot decide if this is good or bad. It's good because it means Cannon is healthy! It's bad because it would make this sick season a little easier on him and not as stressful on Trent and myself. Basically, as if we didn't keep him home and try not to let him be around too many people enough already it's about to be even worse! We will now be known as Hermits! We will all be going very stir crazy but we also have to do what is best for Cannon and his health! Please pray for Cannon and that he can get thru this sick season without getting sick and especially not get RSV.
On a good note he is growing so well and changing so much. He has been sleeping with his mattress elevated due to his reflux and we have been lowering it a little at a time. Last night was his first night to have his mattress completely flat. He did great! He slept so great and every time I looked in his crib on him he was sprawled out! So cute! He went from looking huge in the little nest he slept in when his mattress was elevated to looking small(ish) in the crib with no nest. I am hoping that over the next couple of weeks he continues to sleep well laying flat so that I can get back in my own bed in my own room!
Well, we will see all of our friends and family next spring! Haha! It cannot get here fast enough!
Love,
Christian, Trent, and Cannon

What a blessing!!!

Praising God this morning! I just got the best phone call! I wasn't expecting my dad to call with the news he had for me....I figured when I saw his name on my phone that he was calling to make sure I was ok because it was a little bit of a rough day yesterday. But that wasn't it at all. He called to tell me that Cannon's lab results were back and for the very first time ever the results were all COMPLETELY NORMAL!!!!! His liver is functioning perfectly! This is awesome news! The good Lord has definitely watched over Cannon and made sure that this little boys liver was repaired!
Also his g tube site has healed perfectly and is not leaking at all. The only problem there is I'm still looking at that stupid tube every day trying to decide what to do with it. Throw it away or keep it because it was a part of Cannon for so long! Haha! A couple people have said to put it in his baby book!
Cannon also LOVES oatmeal with bananas. He is really liking carrots and I don't know why because I think they taste kind of yucky! He still likes his pears and applesauce. He does not like green beans and we finally gave up on any kind of rice cereal because to get him to take it we had to put so many pears in it we might as well have been giving him plain pears!

Love,
Christian, Trent, and Cannon

EIGHT hours and rolling over!

EEEEKKKK!!!  What a big day today is!!! Trent and I are a couple of proud parents!
As Cannon is getting a little older we have been working towards sleeping all the way through the night without having to take a bottle. He was on a very strict 3 hour schedule. Then slowly we were allowed to let him go 4 hours. Then 5 hours. It took us a while to get him to go 6 hours. Then he’d only go 6 ½ hours! I thought we’d NEVER make it a 7 hour stretch! Then finally one night he did it! Last night he did his first EIGHT hour stretch! YES, EIGHT! I was so excited! I woke up at 4am (which would have been his 7 hour mark for wanting to get up to eat) and waited like 30 mins on him to wake up to eat. I guess I fell back asleep because he started crying at 5am wanting to eat! When I saw 5 on the clock I could have done my happy dance, had I thought I would not fall over!
As if that wasn’t enough for us to celebrate he was playing on his tummy in the floor a while ago when suddenly he ROLLED OVER onto his back!!!!! He has been trying so hard for the last several days to do it and he’d get on his side and get tired and fall back onto his tummy. NOT TODAY! We are so excited! He’s just hitting these milestones and passing them by! I’m going to blink soon and he’ll be toddling all over the house! I guess Trent and I need to make a trip to the store to find baby proofing stuff because I think this curious kid is going to be into EVERYTHING! Time to start cleaning up I guess. Ha-ha!
I just wanted to share these exciting little things!
Love,
Christian, Trent, and Cannon

Cannon rolling from his tummy to his back!

Six months old and the Gastric Tube is OUT!

So in my last post I was saying that the G.I. Dr. wanted us to have Cannon keep his g tube through the winter in case he got sick and did not want to eat we could still give him his nourishment. So at that point we made an appt. with the surgeon to get a new g tube placed because the one he had was not very stable. It was able to move around quite a bit and you couldn’t tell if it was further in his tummy than it was supposed to be. So the next size tube he could get was more stable. It had something on the inside and the outside that would keep it more in place and this one would get us through the sick season then he could get it out all together! We arrived at the surgeons office and quite frankly he was really annoyed that Cannon even still had a tube! He said basically that Cannon was nearly 6 months old and had not used the tube since he was in the NICU and there was no reason that if this child is eating and taking all his meds orally that he should keep a tube. He also said we need to treat this child like a normal child and normal children don’t run around with tubes for the “just in case” moments and that if Cannon were to get very sick and wouldn’t eat he’d be admitted to the hospital and get a feeding tube until he’d eat again. Also this is much less invasive! So his plan was to call the G.I. Dr. and tell him that he thinks it should be out! The nurse practitioner from the G.I. clinic called Tuesday about mid morning after our appt. on Monday at the surgery clinic and left me a voicemail just saying to call her back. I tried calling back an hour later, and a day later, and two days later and still no call back. Thursday night after Cannon’s bath Trent and I noticed the tube was leaking around the skin. So we tried to keep it in until we could at least hear what the nurse practitioner at the G.I. clinic said before we had it taken out on Friday morning. Well, I had a long night of changing gauze and tape and clothes that had been soaked through rather quickly and as I was changing it Friday morning at 7am the tube just came out around the gauze and tape! However, the little mushroom cap that kept it stable on the inside did NOT come out on the end of the tube. This would be the cause of the leaking because the tube broke! No worries though because Cannon has passed the mushroom cap part of the tube and the hole where the tube was is healing very nicely. And no more leaking! So, on the day that Cannon turned SIX MONTHS OLD, he got his very last tube out! We couldn’t be happier for him! We have decided after all this time of changing a diaper and then tucking the end of a tube in the strap part of the diaper that it’s weird to not do it. Out of habit I keep trying to grab a tube and stick it in there. I guess one day I will forget all about that! I think even Cannon knows it is not there anymore and is so happy about it!

 We went shopping for Cannon some new winter clothes last weekend. We didn’t have any long sleeved stuff for him because once he was born so early I just wasn’t sure what size to buy. I’m glad I held off because I would have bought all of the wrong sizes! The few things I had bought recently I had to take back because I bought the wrong size! Fortunately I was able to find the exact same thing in the right size! We got him a lot of really cute stuff! I think I’m going to have to tell the G.I. Dr. they will have to see us more than once a month because he’s got some really cute outfits to wear and nowhere to wear them to since sick season is about to hit and he’s not supposed to be around people! Ha-ha!

This is the first picture I took of Cannon when I first arrived to meet him after I got out of the hospital.  He already had his g tube in his tummy.  I don't have a picture of him without his tube.  Since the tube came out it has had a bandage over the site.

Just one of the shirts we bought while shopping last weekend!

Love,

Christian, Trent, and Cannon